Our beautiful little girl, Morgan Avery, was born on July 12, 2014 with a Congenital Heart Defect (CHD) that was undiagnosed before birth. Her defect is Truncus Arteriosis, caused by DiGeorge Syndrome.

Truncus Arteriosis is a rare heart defect that occurs in an estimated 1 out of every 13,000 births. Morgan was diagnosed within hours of being born and was airlifted to Levine's Children's Hospital in Charlotte, NC where one of the best pediatric cardiology teams in the country performed open heart surgery on her at a mere 4 days old.

On October 9th, 2014, Morgan went home to be with Jesus. She passed from Sudden Cardiac Arrest due to an Arrhythmia. It was unexpected and shocking.

Morgan is our 4th child and we truly believe God has blessed us with a special baby and he is trusting us to carry out her purpose in this world. In the wake of her death, we have been inspired to share our journey of mourning through this blog. We are also compelled and motivated to spread awareness of CHD and DiGeorge syndrome. We started the 335 Heart Foundation in Morgan's honor to support families and children with Congenital Heart Disease.

We love you Morgan Avery!